I find it hard to find time to write on this blog. It is hard from a time standpoint as well as emotionally...it's difficult. I think if I just type a few lines about the good or bad part of the day it might be a little easier.
So here is the bad...what possesses a child to intentionally bang his head out of frustration? Every bang intentionally hurting himself...then crying and continuing. Trying to stop him is even difficult. I don't get it...stopping this pattern seems impossible.
The good part of the day...I was able to sit with my daughter and peacefully watch the movie Julie & Julia. We both loved it!
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A few of the facts
Born on Leap Day 14 years ago...we knew he was special from the start. It has been hard to start this Blog...after 14 years I don’t know where to begin. So much has happened in this time.
He was diagnosed with Opitz Syndrome somewhere around 7 months.
By the first year, he was diagnosed as having moderate to severe hearing loss in both ears.
He became deathly ill around 18 months and many years later, he was diagnosed as having Crohn's Disease.
He learned to walk at age 7 1/2.
He still does not talk and does not use any formal communication system.
He does not feed himself and eats a pureed diet. Some of this I blame on the Crohn's Disease, for all the medical interruptions in feeding.
We have been working on toileting for the 3 past years. He has made some progress, but still has a long way to go.
He was diagnosed with Opitz Syndrome somewhere around 7 months.
By the first year, he was diagnosed as having moderate to severe hearing loss in both ears.
He became deathly ill around 18 months and many years later, he was diagnosed as having Crohn's Disease.
He learned to walk at age 7 1/2.
He still does not talk and does not use any formal communication system.
He does not feed himself and eats a pureed diet. Some of this I blame on the Crohn's Disease, for all the medical interruptions in feeding.
We have been working on toileting for the 3 past years. He has made some progress, but still has a long way to go.
About Me
- Susan @ Oh My! Creative
- I have a love of entertaining and living a creative life!
My Other Blog
My Other Blog
Fahionable Short Girl
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