I am just back from spending the day with son. He has been living at the facility where he is receiving intensive therapies for feeding. He receives around 5 1/2 hour sessions a day with an OT and Speech therapist. Things have gone slow the first two weeks. He has multiple disabilities and does not really understand what is going on. He is also very defensive especially in and around the mouth.
I am a bit disappointed there has not been more progress. I really hoped this would move him to a better functional feeding level. His issues have been self feeding, biting and chewing food and difficulties with increased texture. His diet has mostly been pureed for most of his life. Now at the age of 14 I feel he should be moving on to be more dependant with eating. I don't think this is going to happen.
The team will evaluate his progress at the end of the week to see if he would be better off in an out-patient environment. The in-patient environment is very hospital like.
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1 day ago
1 comment:
susan, i can't know what you have and are going through, but i understand disappointment.
(hug)
sometimes when we think way out of the box *crazy* ideas come to us that work. maybe today or tomorrow you or one of the staff will just try a uncharted technique with your son and will find success?
another (hug) and hope for good news. :)
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